Hello,
I am a mother of an almost four year old with Hypoplastic Left Heart Syndrome. I decided after reading a few post on other sites about the struggles parents with HLHS children are having, to post ideas, thoughts and experiences for all to see. I have heard horror stories and read articles that give miss information about what these children will be able to do when they grow up. I am going to try and bridge that gap for some. I will also be posting help ideas on how to deal with certain situations as I know that all cases are unique but maybe a little advise from someone who has been through this will help another family deal with thier situation. We had such an amazing yet frightening journey and I will share our story with you and how we dealt with it at the time and how things are now. I hope to have lots of followers but if only a few that is ok too. I will be enlisting help from close friends with children with HLHS and also other Congenital Heart Defects. I chose to start this now in honor of National Heart Month! I hope you find this helpful or just a fun and informative read!
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